Stargardt Day 2017

Stargardt Day 2017

Saturday 18th March 2017

About the event

Inspired by conversations with and enquiries from people with Stargardt disease, Stargardt Day is a free, one-day meeting for people with Stargardt Disease, their families and supporters. It has been designed in partnership with patients and relatives to make it relevant and meaningful for those attending.

We aim for this day to provide an opportunity for those affected by Stargardt disease to: 

  • meet one another and share both experiences as well as hints and tips for daily living;

  • find out about the condition and some of the research being undertaken to address it from researchers and clinicians from UCL Institute of Ophthalmology and Moorfields Eye Hospital;

  • discuss what people feel should be the priorities for the future, with the opportunity to share these with clinicians, researchers and charities supporting people with Stargardt disease and their families.

We would like to offer special thanks to our Stargardt panel who have been working with us to design this day.

While we cannot provide an opportunity to register your interest to enrol in studies at this event, we will be highlighting some of the latest research into potential therapies that are currently under investigation.

 

About Stargardt Disease

Stargardt disease - also known as Stargardt macular degeneration, fundus flavimaculatus and juvenile macular dystrophy - is an inherited condition that affects the light-sensitive layer at the back of the eye called the retina.

Stargardt disease is caused by having a defect in one of several genes (ABCA4, CNGB3, ELOVL4, PROM1 or PRPH2), which leads to degeneration of the photoreceptors (the light-sensitive cells required for vision) in a region of the retina called the macula, resulting in a progressive loss of sharp, central vision.

Symptoms often appear in childhood and can also include wavy vision, blind spots, blurriness, impaired colour vision and difficulty seeing in dim light.

Currently, there are no treatments. However, research remains ongoing to assess the potential for a range of novel interventions for this condition.

Enquiries

Should you have any queries, or to register your interest in another way, you can contact us on:

  • tel: 020 7253 3411 ext 4658
  • email: eye.info@ucl.ac.uk
  • mail: Andi Skilton, UCL Institute of Ophthalmology, 11-43 Bath Street, London, EV1C 9EL

Register your interest

Sponsors and support

Gene and Cell Therapy Group, UCL Institute of Ophthalmology

NIHR Moorfields Biomedical Research Centre